A research-oriented review of the peripheral nervous system and dysautonomia [autonomic nervous system (ANS) dysfunction], including Postural Orthostatic Tachycardia Syndrome (POTS), the most common form of ANS dysfunction.
GI and gluten-related disorders, nutrition, & a personal update: 2017 and my most recent diagnosis of Chronic Inflammatory Demyelinating Polyneuropathy (CIDP).
Doctors frequently confuse "flexibility" and "hypermobility," and the misconceptions complicate diagnostics and delay patient care. How does Ehlers-Danlos Syndrome look clinically? Here's how EDS looks for me.
Invisible illness: Just because you can't see it, doesn't mean it isn't there. Living with Ehlers-Danlos Syndrome is hard enough, but the insufficient knowledge of EDS in the medical community, combined with the societal intolerances for invisible disabilities, makes every day so much worse. EDS does have a very distinct clinical picture, but it's not the picture that's well-known presently. The lack of awareness around EDS and its multi-systemic presentation needs to change. In honor of all the zebras out there, here are 30 things people may not know about my invisible disabilities.